Monday, March 20, 2017

Thoughts from my desk

It's the weekend so I'm sat here working on today's entry after thinking over some of the weeks experiences.
I think the first thing is last weekend's written work showed I am capable of doing something I have  agreed to to a very good standard, being prepared to work with my conditions and the emotions that build up in me.
Another thing showed how not respecting how certain of my conditions are creates a situation where I feel very much out of things, unable to use those same abilities in what was on the face of it a less demanding task.
I have as some of you know from being with me severe problems with short-term memory, concentration and find noises very distressing and I was in the process of writing a Thank You card to a relative where I have people dashing all around me looking for things, shouting to each other without making it plain who it is they are speaking to, then trying to ask for information that isn't relevant at that point.
I can't hear myself think, I am struggling to remember what the sentence is even I'm trying to write, having to cross out one word as I got muddled up and what I did write wasn't what I wanted to convey even. I felt embarrassed to hand it over to the person who was going out to mail it even.
This was so unneeded and that kind of thing when I'm out at the check outs in stores paying for things and so on just gets to a point I just 'freeze over' and 'shut down'.
On the other hand where on Friday I found a micro sd card that contained sixty odd music albums that gone awl, where I the past I'd of been getting super anxious and stroppy I just calmly checked my back ups for the artists I had recordings by on the card, identified  them and got on with the job of ordering a replacement to put them all back on again maybe taking advantage of its bigger capacity to combine it with another.
In that way I'm getting at handling my conditions and how they affect me but you do to a greater extent than a good many others need to bear them in mind even if that other example is one that perhaps isn't fair to expect anyone to work around never mid  someone like me.

Friday, March 17, 2017

Bigger girl talk - The value of work

I deliberated over where to write this but decided as there were other things I may wish to talk about elsewhere I'd do that here this Friday.
A few years back a Government Minister here in Great Britain, raised several eyebrows when he appeared to suggest a major measure designed to set a basic level of pay - the National Minimum Wage - ought not to apply to learning disabled employees and the resultant storm left people thinking the idea was discarded.
Recently a noted personality and champion of disabled people and indeed parent of a 'grown up' child with Downs Syndrome, Mrs Rose Monckton decided to raise this topic again as the person who runs a training program for learning disabled adults.
The essence of her argument run that the output might not justify the National Living Wage for those over Twenty-four years plus the National Minimum Wage of Sixteen through Twenty-four year olds and many lived with their parents and so didn't 'need'  more than say Two pounds per hour as their parents provided for them. Hate the expression, but in essence this two pounds would be more like 'pocket money' for them being used for snacks, trips out and clothes rather than say food or housing costs.
By doing this, she argued learning disabled people would be more included in the work force and more importantly would feel they had a place in society that would be valued.
I suppose the first thing is to I say I share the same objective not least for having learning and developmental disabilities on top of physical ones, believe strongly in a more inclusive society and that even people  with learning disabilities should have employment opportunities.
That's where it stops with me because while some may be content with living with parents or some shared home with assistance -which absolutely is their right- the problem with this is it means they could not look for an flat where they would need to find money even if they claimed back some housing costs though other welfare programs.
The second area of concern is we are purposely exempting people on the basis purely of diagnosis and labelling from the everyday wage expectation whereas in the past 'top up' schemes would of helped companies employ people by paying them so they offered the same wages to a disabled employee.
The third area is if the argument is that some work may be therapeutic in terms of teaching life skills, the 'value' of work, retention of abilities which as someone who is disabled I'd agree with, then there was no reason they could not be  permitted to work in a voluntary capacity, assisted with any necessary travel costs and perhaps allowed to keep a small amount of any money they were given by way say of tips without having to declare everything.
That would provide  for much of this, be more flexible and not compromise the notion of everybody regardless of disability being literally of equal value reflected in their wages.

Monday, March 13, 2017

Wrapped Paw

First off thanks Tracy and Sam R for your birthday greetings and no nothing Sanrio came this year although I can always raid the kitty for something or other!
This weekend was a kind of study weekend spend working on a collaborative project which was fun cos blank paper or areas on a word processor page usually make things harder for me to get started  so I put up some subjected headings and I found one bit to get started on and as if by magic, the rest in time came and was appreciated by the person I sent it to.
Expect the unexpected as in with the birthday presents  was something different

Yes, we had white and grey school socks, harlequin and pastel fashion ones and even cute fashion ankle socks before now.
Introducing now black long soft school socks as bought by my folks!
Maybe apart from me being a bit more grown up they're getting more to grips with what I feel okay in or like to play with which is a good thing imho.

Monday, March 6, 2017

Another 12 months around the sun

Say everybody, isn't just possible that someone has completed an twelve month arc and might still be twelve today? Stranger things have happened around these parts I can assure you!

Hmm, no better a way for this birthday girl to mark hers with something featuring her all time favourite girl bring forth a cake.
I went out to lunch with Mom and my older brother locally.

Given how old I am, I do get music as presents and this special  two cd version  of an album I liked whose original copy suffered from so-called cd rot making it unplayable is something I'll treasure with its bonus tracks.

This came out last year having a couple of hard to find albums in it and two I only had on download with card replica sleeves so is much appreciated both from Mom.

 Coming soon is this, a new colouring book as I've completed my Frozen one now and some Milk Tray chocolates from my Aunt.

I got three new books in the Nancy and St Brides series  by Dorita Fairlie Bruce to add to my collection which will be read, a W H Smiths voucher from a member of the extended family that can be used to buy a book with and reviewed plus money from my brother.

Friday, March 3, 2017


Miss Kitty and I go back quite a long time actually not that I was much good at tennis or badminton on few times I did play it at high school preferring ball games or swimming which is an equalizer when you're disabled which was why I went for a period to a disabled swimming club apart from understanding company.
The instructors were super good at understanding you, your needs encouraging you to try swimming different ways to your fullest abilities and unlike regular pools our water was warmer.
When I hurt my upper right arm in my mid teens, physical therapy in the water was part of how I was helped to regain strength and confidence in using it.

Monday, February 27, 2017

Are we still standing?

Looking very much at this picture taken whilst away, I do wonder how much of this is left since Storm Doris came down on Thursday causing major issues across Great Britain not least here in the Midlands where one person was killed by a flying wooden object in Wolverhampton, another was seriously injured just down the road in deepest Stoke and lots of trees and vehicles were blown all over including three trucks on the A53 near Flash, North Staffordshire.
I noticed the tree near the Royal Wolverhampton School that I have travelled past a good number of times was blown down too along that most attractive section of inter urban road.
Considerable disruption was felt across road and rail transport across the region with services from Birmingham to Crewe more off than on with nothing running to London throughout that day and into Friday.
A structure I know well in North Wales, Colwyn Bay's pier was badly damaged where it juts off  into the see ripping the girders out too.
Nature is a very powerful force and I hope nobody got caught up in the storm.

Friday, February 24, 2017

That Boarding School Girl

In almost but not quite a following on entry, while I was away something unexpected happened.
The person who had taken me was paying a private visit to an online friend of ours so while I was going to busy with the music quiz where we were staying, I asked them to present a small gift on my behalf.
Anyway, come breakfast time Monday, apart from asking if they'd had  a good trip as I had gone to bed before their return, I was intrigued that had something under their arm.
That's when I was informed said person had actually gifted me a book from their collection of "Girls Own" fiction, a genre I do so love by an author I had nothing  by but was part of that 1920's through 1940's boom of school based girls fiction rather like Angela Brazil.
It's a September 30th 2003 reprint by Girls Gone  By of a 1925 classic, the second in the  "St Brides" series of stories she wrote replicating the original text apart from two alterations at the bequest of the Estate of the author where the original text can be found.
Thank you so much for this.

A few notes on this: In some ways this and Nancy at St Brides (see separate review) are rather odd bed fellows with Nancy at St Brides being more a full account of her first term there and this being  the earlier novel that deals with the consequences of her having to leave and her being sent in some disgrace to Maudsley Grammar as a day student under that cloud, very much feeling the need work hard in lessons and keep the impulsive and easily lead of her personality very much under a lid.
Indeed so much did she try her darnmost that the gulf between her effort and the remainder of Form V.B. invited suspicions that when a conversation by arch rival  Larkiston school  students on the bus that included one who knew Nancy's past became common knowledge as it was overheard by Maudsley students, form V.B. become convinced she'd done something wicked.
In truth while what she had been responsible for did had very serious consequences, in reality it was more she wasn't sufficiently mature so failed to realize the recklessness of the situation she'd lead the others into. It was the Head Mistresses perception she was not mature enough for boarding school that was the real reason she left. [She wasn't expelled according to "at St Brides", contrary to the claim in this novel more recommended not to return next term because of the Heads understanding of the real issue around her conduct].
When eventually the truth did come out  - and not being very happy over it - she is better understood for the grasping of the second chance given to her and becomes more an asset never more so when she steps in at the last moment in a inter school cricket match with Larkiston as Charity Sheringham had injured her hand leading her team to a draw with a memorable performance.